Day 930 - Going home without a trach...

Ava did it! She made it through the night without needing a trach and she breathed on her own! Can't believe I'm saying - Ava breathed all by herself!! Thank you God!

We did get a blood test for Immunology to know her IgG & IgA levels when we go there next week Tuesday. Ava was so funny this whole trip to the hospital. She smiled and waved at every one. Held her hand out to touch people, showed everyone her neck...

What a blessing she is...

Thanking God for the trach to be out and Ava to be breathing well and praying for her to eat well...

Day 929 - The day our dream came true...

So I'd like to say it was a huge extravagant procedure with Ava being surrounded by the most prestigious doctors when they took the trach out... But alas, it was her mama that took out trach and washed her neck. Anthony even recorded it for you to see. Exceptionally easy unlike how she came into this world. But Ava was so proud. She showed everyone that once her trach hole closes up, she will get her ears pierced. She showed everyone where all her body parts were and made sure they knew how smart she was. Everyone was grinning ear from ear when they came by her. If she does great through the night, we can go home.

Thanking God for our joy and praying for much more happiness and joy...

Day 826 - Possible Decannulation?

I got the call today to that Ava might go into the hospital on Monday for decannulation if there is a bed available in the ICU. There currently is, but if it gets busy in there, we won't be able to go. We will hear sometime between 8 - 9 am to get the news to go in.

In the meantime, here's a fun pic of Av and I...

Thanking God for our opportunities and praying for the future...

Day 916 - Happy Day at Lung Center

Anthony, Ava and I went to Lung Center today hoping for some great news. We met with Ava's doctor and at first we thought he was going to say no. Then he talked himself into it because Ava didn't need the vent when she was sick. Then of course she wouldn't need a trach. It was very surreal. We are very excited and so is Ava. Our Lung Center doctor is actually leaving in a couple months. He said that we won't be needing them much anymore. Ava's pediatrician is also an asthma specialist. He asked if we wanted to keep the vent for a bit, but Anthony said that we would have to come in if something was wrong with Ava, so let's get the vent out of our house. ;)

I called ENT as soon as we were in the car and the scheduler wasn't in the office today. She will be in tomorrow.

Thanking God for Ava's life and praying for her to be decannulated...

Day 910

Things haven't been too crazy lately. Just really enjoying Ava walking more, going out to Darien Lake and riding the merry-go-round with her and taking her out on adventures. She has been spitting up the last couple of days and we really don't know why. But she does weigh 13.05 kg. She has gained a decent amount. I did call GI with hopes that we can go down in food and possibly need to go up in meds with her weight increase. I haven't heard back yet.

Tuesday we go to Lung Center and we are praying that the trach can come out soon after. With Ava being sick and not needing the vent, there really is no need for a trach. What a relief that would be for her not to have something in her throat and tied around her neck. Maybe she would eat better?!

These are two photos of Ava playing with some friends... Once of the first times she's been able to play with kids in our house. <3 br="br">

Thanking God for our fun with Ava and praying for the trach to come out and for her to eat...