Immunology

Ava had an Immunology appointment today. The doctor wanted to put Ava back on Zithromax but knowing that her Pediatrician didn't think it was a good idea to keep her on an antibiotic and my gut was also saying no, I asked her if we could stay off of it unless she was getting sick throughout the winter. We don't go back for 6 months and once we get through this winter we should be seeing them only once a year.

Today she only weighed 26.6 pounds without shoes. We really need her to gain weight. She definitely can eat sometimes. She can eat a whole cheeseburger or grilled cheese. I guess we just need to feed her ice cream for a few weeks. I don't want to feed her unhealthy food but we certainly don't need to feed her in her gtube via a feeding pump. Also, when we do that she isn't hungry to eat orally.

Thanking God for Ava and praying for Ava's brain, lungs and body as a whole to grow...

Neurology

Ava had a neurology appointment today. We were hoping that it would be the last one she would ever need. She weighs 27.3 pounds and 37.5" tall with sneakers on. Her head is 45.6cm or pretty close to 46 cm, which is what she was measured at in February. We saw the nurse practitioner who was concerned about her head size. It's under the growth curve and it hasn't grown since February. Later today when I looked it up in my notes, she measured at 46 cm on May 31, 2012. So it has been over a year that her head has grown. We are going back in December to remeasure her head with her actual doctor. The nurse practitioner didn't even know that it's been over a year so I don't even know what she would think of that. She did have a CAT scan and an EEG not that long ago and everything was normal. So please keep her in your prayers.

Thanking God for Ava's life and praying for Ava to grow strong and healthy...