Sorry for the delay in getting these posts to you. We have been very busy and we did manage to get sick the last couple of weeks. We got some good news today - Ava doesn't need immunoglobin infusions this winter, unless she is getting ill frequently. We found out they don't believe she needs the Synagis shots during the winter to fight against RSV, because although her test was negative, her numbers for the psuedococcal (I think this is correct spelling ;) ) showed that her body reacted. Her IgG numbers went up from 509 to 545 (this is still low for her age) and IgA from 20.9 to 21.6 (also low for her age). We still need to be very careful with her but we can also get out and have a little more fun than last year.
We did take Ava to Pumpkinville and she was able to stand next to the Pumpkinville sign that measures their height. It was incredible to have that experience when a year ago Ava was on her ventilator. Ava had such a fun time and has such a joyful laugh. She gives us all amazing joy.
Thanking God for Ava's laugh and praying for Ava to eat solids...
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