Ava gets very mad now with her vent on. She wants to roam the house free and gets upset when we have to put her back on after 45 minutes. I decided to call Lung Center today instead of Monday. I got approved for Ava to be off the vent 1 1/2 hours twice a day - total of 3 hours a day!!! She does so good with it off. Her sats are even 100% when she isn't moving. Praise God!
She does still spit up about 1x a day. We are praying that it stops. It isn't as bad as it used to be. We still don't get any gastric juices so it's wonderful not having them to drain anymore. She actually has been doing great eating orally again. She even asked for her cup of milk today and is drinking!
We are going to Developmental on Monday. I can't wait to see what age her skill level is at. Our PT is coming with us to help us show Ava off.
Thanking God for Ava's progress and praying to be completely off the vent...
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