Monday, July 16, 2012

Day 894

Sorry for the delay in posting. With the Taste of Buffalo just ending last Sunday, trying to catch up with other duties and the lack of nursing, I have let Ava's blog get behind. I will update more this week and I have some posts already planned.

Ava is doing very well and she is off the vent now for over two weeks - 24/7! Praise God! Today we went to Darien Lake in the afternoon because she wanted to go on the Merry-Go-Round. She is unbelievable. The ride has barely started and this little girl is signing "more". By the time the ride stopped, she was in tears and signing "more", "more". We went on three times and each time she did it. The last time she was better, but when we went on the train ride, and got off, she arched her back and wouldn't let me put her in her stroller. She also is going potty in her potty often and tomorrow we are going on a date to get her big girl underwear. She is so excited. Her cheeks get these dimples in them and she is all smiles at the thought of Elmo underwear. Being with Ava makes your heart soar.

Ava weighs 12.6 kg = 27.78 pounds. She gained some more weight. Lung Center is very happy and we continue to take things week by week. Keep your prayers coming, we still need to get this trach out and she still needs help eating solid foods. Thank you!

Thanking God for being with Ava and praying that we have more nursing and Ava is trach-free...

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