Today was another great day with Ava. We went to Developmental to review how she's doing. The only negative is that she had another blood draw to find out her levels of immune system (IgG & IgA). It took three of us and she was fighting hard. As soon as we walked in the room she was upset. Just the like the blood pressure cuff - she absolutely freaks out when she sees the cuff too.
Ava weighs 28 lbs now. And here's the good news... They found her to be at the following months, give or take, sometimes she tested a bit higher, but here's the average:
Fine Motor skills - 24 months
Gross Motor skills - 12-18 months (she's doing much better walking lately instead of crawling)
Language - 20 months (and that's with a trach!)
Cognitive - 24 months
She has really stepped up since we had been there 6 months ago! Praise God for a child that is just incredible. Ava was all smiles there and talking away with her Passy Muir valve. They just want to see her 6 months and we need to work on her trunk control. I can't imagine what 6 months will bring!
We also saw Ava's respiratory therapist and we spoke for awhile. She is so happy that Ava is doing so well. She keeps saying we won't need nurses for much longer... meaning the trach will be out soon. We have an appointment on August 7th and hopefully we will get the ok to go down in trach size and then ENT will take the trach out. Don't know when that is, but they were looking for Ava to get sick. Since she was sick less than a week after coming off the ventilator and didn't need the vent, it has definitely given us more confidence and she passed that test. It's amazing what a year has brought our family.
Thanking God for Ava's progress and praying for Ava to be able to eat and be trach-free...
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