Today we got the approval to decrease Ava's Prevacid to 1x a day. If she does fine without that dose at night, we can call in a week or two and they will approve for us to not have to give her the med anymore. Praise God! Ava's meds are now only Albuterol, Qvar, vitamins & Floride! Hopefully in the spring we can stop using Albuterol 2x a day as well. We also are having her drink 350+ of her Pediasure and whole milk instead of sitting for 2 hours in her high chair to get fed through her g-tube. She receives the other 250 through her gtube at nap time.
We go to ENT next week and in a month back to Lung Center. We actually are going to be getting a new Physical therapist and finishing up Ava's evaluations for transition out of early intervention. In two weeks we have her meeting with Alden school to go over how many therapists she will be seeing. She is also potty training but really doesn't care about being wet. She loves to clap her hands and have us shout with joy when she does go. It's hard to believe that she will be three and everything happened three years ago. It's amazing to see how God has been faithful to us.
Thanking God for Ava's progress and praying for Ava to eat and gain weight...
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