Day 1142 - Cardiology

We went to Cardiology for Ava's annual appointment. She had an EKG and echocardiogram done in the office today. The doctor said that her heart looked normal in both tests. In fact, he said that if was to look at those test and not know her history, he would have never known that she had problems in the past or was even on a vent. Praise God! We don't have to go back for 18 months and then that could be her last visit with him. The progress that Ava has made in over 3 years is certainly miraculous. I have been updating this blogs' photos from the early days and I can't believe what Ava has went through and how she is now.

Tonight in fact Ava was yelling to me to come upstairs and cuddle. Her sisters were laying on my side of the bed watching "Little House on the Prairie" and she was telling them to move so I could get lay there. Ava wouldn't stop and was demanding them to move. I don't think her sisters have realized the prima donna that they have created by always giving into her.

I spoke with the Nutritionist from GI this week and faxed her the 5-day food study. She said she was 2 weeks behind in analyzing patients studies'. She did say that Ava could just have a high metabolism. My poor girl eats until she can't stuff anymore in her tummy and she still doesn't gain much weight. She also said that they like to have a child not have anything going in their feeding tube for 6 months before they take the gtube out.

Thanking God for Ava's heart and praying for Ava to grow strong & healthy lungs and body...