Day 770

Well it's been a while for a post, but that's because things have been pretty great. She is off the vent 6 hours a day, and while she is off, she is scooting around in a new walker, crawling, pulling herself up on our couch & table. She has even been on the swing a few times because we have had nice weather. 

Ava was sized on Thursday for orthotics that will fit into her sneakers to help her not turn her feet out so much. They think that she doesn't have a lot of strength yet in her upper thighs so with these and possibly some bands around her legs, we can strengthen her legs without going with longer orthotics.

On Monday, I will be calling Lung Center to hopefully go all morning and all afternoon off the vent. Ava is doing so good without it. No problems at all. She also is eating really well. Opening her mouth wide and swallowing. That will definitely be hard to get her to eat more solid foods. She is only spitting up once in a while. I'm wondering if it correlates with when she needs to be suctioned. Tomorrow it's supposed to be a nice day so we are looking forward to taking Ava out. She was pointing all day today to go outside but it was too cold.

Thanking God for Ava being off the ventilator and praying that she can eat solid foods...