Today Ava went to Lung Center. I thought we would just be going back to 15 minutes a day for a week or so, but I was pleasantly surprised. We took her off the vent the whole time she was there and she was completely 100% saturated (with oxygen). Her CO2 levels were low as well. The doctor decided that we can start back at 3 hours twice a day for two weeks and then we will go off all morning for 4 1/2 hours and the same for the afternoon. We are so excited! After that we will wean her completely off during the day except for nap times. Once that is complete, we will start with nap time, then bedtime. At some point, I believe she goes in to be monitored while she sleeps. We were told this will move more quickly now that we are into many hours of being off. Can you imagine if she is off the vent around the clock by summer? If we keep her healthy, that will probably happen! Praise God! It's so amazing what a year will bring. It's almost 1 year since she has been home. I don't think Ava can imagine her life without seeing her sisters and family every day. We are so blessed to have her.
Thanking God for the gift of Ava and praying for more nursing...
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