Ava has been doing great. Yesterday Ava had her last IVIG. Her IgG level came back as 733, which is good. We will be getting a blood test in July and August, and if her levels stay higher, we can stop the IVIG hopefully permanently. Her IgA which shows her immune system stats in the long run also went up. This shows that she shouldn't have a permanent problem with her immune system.
Today we went to GI in Syracuse, NY. We first went to the Feeding Clinic and the speech pathologist gave us quite a few suggestions. For example, a larger spoon, more real food like bananas, and mashed potatoes. She also suggested skipping stage 3. This is definitely the hardest part for Ava. She has been keeping most of her food down. We just sometimes have irregular spit ups. The GI doctor said that isn't reflux. We will also re-evaluate her digestion after she is off the vent, hopefully in September. We will go down in her Eryped med and then get another test done in Rochester.
Everything is going really great and we also got approval to go off the vent for 1 hour after Ava is sound asleep. Keep praying... We need it. Ava has a Lung Center appointment next Tuesday, the 5th.
Thanking God for Ava's amazing progress and praying for Ava to be off the vent and decannulated...
No comments:
Post a Comment