Thanking God for Ava's growth and praying that we have many more fun times as a family...
This blog is all about the life of our beloved daughter Ava, whom we don't know how long will be on this earth. We pray every day for God to give her more strength for her lungs to grow and live longer than any of us.
Friday, June 10, 2011
Day 501 - Ava went to Darien Lake!
We had a wonderful day today. We got to all go out today and have fun as a family at Darien Lake. Ava had a hard time looking around because she was squinting. It wasn't sunny out and she wouldn't keep a hat on, but this was the longest she was ever outside. She is such a good baby. We dragged her around the park while the girls went on rides and she just watched everything, never complaining. We stayed from about 11 am to 1 pm. Alexandra and Ariana were so excited to take Ava out.
We finally got her Revatio med that she went without for over a day. Our insurance wanted us to go through a mail order, but we finally got it. Hopefully next time it will be easier. I just ordered her other meds to make sure we have them in advance and I haven't heard that they will be a problem.
Thanking God for Ava's growth and praying that we have many more fun times as a family...
Thanking God for Ava's growth and praying that we have many more fun times as a family...
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