Ava has been doing so well lately. She has been pulling her ventilator off and by the time we wipe it and put it back on, she doesn't have any trouble breathing on her own. Her saturations are mostly above 95 and when she gags she doesn't desat like she used to. She also used to close her eyes and breathe heavy when the vent has been off to long (maybe 30 seconds or less) and that doesn't happen anymore. I have always heard that when a child knows they can breathe on their own they will keep taking the vent tubing off. They also can be doing it because it becomes a game with them. But her normal symptoms that used to happen, don't happen anymore. Praise the Lord! She has also pulled her trach out twice now on the nurses. That is not fun but she hasn't seemed in distress.
She is also signing quite a bit for us. It's awesome to see her communicate with us. She doesn't like it when we make a "moo" sound like a cow. She breaks into tears. It's unbelievable. BIG gigantic tears. Poor baby... Guess she doesn't like cows.
Thanking God for Ava's growth and praying for continued growth and peace...
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