Day 577

Another great day especially because our night nurse came in. We were supposed to go to the tractor pull in Alexander and we have planned it all month. Unfortunately our truck battery was dead probably because a little munchkin left the door open. So because we were afraid our battery would be dead in the middle of a field, we decided to go into East Aurora and make S'mores at a cafe in East Aurora. It was fun and I have been wanting to take the kiddos for a while. It was great having Anthony with us all day since he didn't have to sleep.

Ava had a fun day. I tried to give her some jello and she gagged a little. Didn't desat but it was so funny watching her touch it. She would pull her hand back so fast because it was cold. She signs that she is "All done" with the vent. I am trying to train her to do it for the doctors when we see them next Tuesday. We are also completely out of brand new trachs. We only have the extra trachs that we cleaned. We will get another 4 next week, but if she pulls it out again, we'll have to use the "used" ones. I guess we are lucky that we get 4 a month from what I have heard.

I forgot to mention that we closed on the house in Buffalo on Thursday. What a relief! We were told on Tuesday at 4pm that we were closing on Thursday and that they were having a walk through on Wednesday night. So we had to get in there quick and get all the boxes and garbage out from our tenants that left it. We weren't expecting to get out that quick but hopefully we can get a bigger vehicle to fit all of us and Ava's equipment and nurse.

Ava weighs exactly 12 kg = 26.26 pounds. We have an ENT appointment this Thursday.

Thanking God for Ava's life and praying that next week's Lung Center appointment is the news we have been waiting for...