We are so excited with Ava's progress it's almost unbelievable. Every day is amazing and I am so sorry I haven't been blogging more. We really can't wait to go to Lung Center September 6th, which will be the day after we found out we were pregnant with Ava two years ago. It would be such a blessing to be out of this situation earlier than we expected. She still has a hard time eating but she did really good with OT on Thursday eating "Cinnamon Roll" pudding. Unfortunately Wegman's was out when I went there on Friday. We bring her to the dinner table every day so she can see what it's like to eat. But the greatest part of our days this week has been when the therapist has said that Ava's is such a miracle and her growth is a miracle as well. And I of course have a big mouth and declare that it's God's blessings. The therapist doesn't comment but I really hope Ava's adventures have made people think about God and his love. Ava is still pulling her vent off all the time but she isn't desatting and it's wonderful not having to feel so stressed getting it back on. She is even standing on my legs a little bit and pushing with her legs. She got IVIG (immunoglobins) on Tuesday and it went very well. It will hopefully be the last, but we will go to Immunology on the 6th as well for a review. I can't wait for everyone to see her. She is certainly "Amazing Ava".
Thanking God for Ava and letting us borrow her from heaven for a while and praying for Ava to eat and be vent free...
No comments:
Post a Comment