Sunday, October 30, 2011

Day 640

Today was a miracle! I fed Ava 5 times today into her stomach. None of those times did she spit up the food. She also ate breakfast with us (pudding) and some milk from a slow-flow sippy cup. She ate for at least 15 minutes because she hadn't eaten since Saturday morning. By early afternoon I decided to call the GI doctor and give him an update. We decided together to keep the "G" in place and see how it goes. So glad we don't have to get a GJ tomorrow. She ate 2 more times today and did pretty good. We are supposed to feed her 100 ml every 3 hours - 5x a day. With her naps I don't think it's possible to get 5 feeds in. Tomorrow we go to Endocrine to see if she needs to continue stress doses of steroids if she gets very ill.

Thanking God for unexpected surprises and praying for Ava to eat and her cortisol levels to be high enough...

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