Ava is doing great again. We have a Lung Center appointment next Tuesday. Hopefully no one will get sick although we have been around so many people that have been. When we go next week, they will hopefully go down in settings to 23 peak pressure. She is also off Keppra for seisures on Wednesday night - that will be her last dose. Another med gone! Woo-hoo! We are also only giving her the Viagra for her heart three times a day now for 4 mls! Yeah! Love not giving so many meds. She will only get 2 meds at bedtime (not including her puffers).
Ava went up in weight to 11.95 kg = 26.36 pounds. Getting back up there again! She also is really using her legs and can stand with a little assistance. She is still only eating very little but she loves to eat with us and always is the first person at the table to put her hands together to pray... That makes my heart melt. What a gift she is!
Thanking God for Ava's growth and praying for her lungs to be healed...
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