Ava is starting to crawl a bit and she really loves to stand. She can pretty much stand holding onto something all by herself. Tomorrow is Lung Center and Thursday she goes to ENT. Hopefully tomorrow we will go down in vent settings again. We are really hoping that we see her get off the vent in the next couple of months. She really needs those tubes away from her so she can start walking and crawling. She also pulled her "G" tube out twice today.
Ava weighs 11.60 kg = 25.57 pounds. She went down in weight from the 11.75 kg. I will probably call GI tomorrow and see if they want to go up on her feed. They still want to go up on her feed, but I think she needed another week to adjust to going up to 180 ml. She also is doing so great eating. She is actually moving her tongue around enough to have her food go back to her throat and she swallows. This has just started happening the last couple of days. She also tasted her first candy cane today. Her sisters would lick their candy canes and then she would open her mouth enough to let the candy cane in. No gagging either.
Thanking God for Ava's amazing growth and praying for a great Lung Center appointment tomorrow...
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