Today we went to Syracuse to see Ava's GI doctor, whom we haven't seen since June. While we were in the waiting room, we spoke to a woman who's nephew was born at 24 weeks and had a shunt in his brain and had sever CP. He died at the age of 13. We can't help but feel extremely grateful. She said that Ava was highly functioning. What's interesting is she hasn't been classified as that because she doesn't have CP but is a normal child on a vent despite her birth at 24 weeks. God - We are so grateful to you!! Family & Friends - THANKS for all the prayers!!
The GI (gastroenterologist) thought she looked great. Ava ate almost a whole bowlful of food for him. She even licked her lips and really showed off. He said we should be able to get her to do a swallow study so I called the speech therapist from Children's when we got back home. Hopefully we should hear from her soon. The doctor is also going to keep her on Pediasure since she is doing so well on it.
We made it back to Buffalo at 2pm, so it was a pretty good day. We also got to use the kid cart and it was amazingly easy to push. So thankful for that as well.
Thanking God for all his great blessings on us and praying for Ava to be vent-free and eating solid foods...
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