Today we had ENT. He said she looked great and he even heard her talk. With her being able to talk, that should mean her vocal cords are in good shape. In the spring, she will have to be put under and have a scope down to see how her trachea and vocal cords look. We are coming back in 3 months and if her vent settings are down, we will probably go down in trach size. We can't have the cap for her to speak until her trach size is smaller since the cap would be too large for her.
We are still going off the vent for 15 minutes twice a day, and she is doing really well. The Lung Center said that her xray looked like what they thought it would look like. It's better, but not perfect. Her right lung is not as far over as it was into the left side as in the past, so there is an improvement. I will call once a week on a Monday, and hopefully we will go longer off the vent. They have also decided to wean her a bit more on the vent. VNA will come out to make those changes.
Thanking God for Ava's progress and praying for continued success...
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