Today we had Ava's bronch done. We had to be at the hospital by 6am which meant that we had to wake up Ava extremely early. But she was as happy as can be and very much excited to be going somewhere. We got there and surprisingly the hospital had no current info on Ava in their computer. They didn't actually even know when she was discharged. So we gave them all her updated info and we were the first visit of the day for the ENT doctor. We were in there about 7:30 and done in less than an hour. We only could walk Ava to the door and then they carried her in. She didn't cry but looked back and enjoyed having an audience. She is such a ham. She loves to sign to everyone and blow kisses. The doctor came out to speak with us after he was done and he told us that she looked "Fantastic". He even said it three times! He said that sometimes the trachea can narrow or have scarred tissue and she had neither of that. Her airway used to be "floppy" as well and that is no longer the case. He said that she no longer needs the ventilator, but we just have to continue following the weaning process that Lung Center gives us. I let Lung Center know and we should be able to wean her at nap time on Tuesday.
When we got home Ava was extremely tired but she really wouldn't take much of a nap. By 4:30pm though, she passed out in my lap and her O2 saturations were hovering around 89. I took her up to bed where she slept for 5 hours and I put O2 on and called the doctor. He said this could happen sometimes with anesthesia. When she was under anesthesia last August we didn't have problems, but this time we did. She was fine after she woke up and no longer needed anything since that point.
We are very excited and hoping that she will no longer need the trach by the end of summer. All signs are pointing to yes. Praise God!
Thanking God for his promises to us and praying that Ava is healthy...
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