Ava went to Immunology today. They are very excited by how Ava's doing. We are going to get IVIG today and then another dose in May and we are going to stop it at least until September. She will get blood tests June, July & August with hopes that she will keep up her IgG level above 500, which she has been. We are also going to switch from Bactrim to Zythromycin because Bactrim is photosensitive and Ava will hopefully be outside all summer. She will only have to get Zythromycin twice a week from end of May to September and then at our August appointment they will re-evaluate that as well.
Ava has been a little bit off lately with her heart rate being higher while she sleeps and belly breathing until she needs albuterol. I think she is getting asthma. Please pray that we can find answers and she is relieved. She also has been spitting up her feeds again. Last night she did it all three times. The heater unit on the vent also broke, just like the time that she almost was drowned by her night nurse. Gratefully, I was able to do it with ease and no drowning occurred.
Thanking God for Ava's immune system growing and praying for her to get stronger...
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