Day 796 - A year ago today Ava came home...

A year ago, Ava came home to be with us. If you read back to a year ago, the next day she started getting sick and she need chest compressions by that Saturday and again the next Wednesday. She ended up having Rotavirus and quite a few of the hospital staff doubted that we could handle Ava being home. Fast forward to now, and we have not been back since April 28th of last year. We have conquered illnesses (even RSV) and kept her at home. It's been hard, but we have been taught well, have the tools like O2 and have had great day nurses and of course our wonderful friend and ICU nurse who has even come from Canada to eagerly help.

Ava has brought us so much joy this year. She is so excited to be alive and we all love how she waves her hand around to say "yes!" and bounce on her booty to show her appreciation. A year ago she couldn't even sit up and she was totally ventilator dependent. Today she is off the ventilator, walking in a walker and signing "mama".

I found out today that Ava's immune system is the about the same as the last time we tested her blood. Her IgG level is 730 (this is good) but her IgA is at 19, which should be atleast 24. It has increased since last year, but not in the last few months. She is still a bit behind in her immune system. Please pray that we can get her immune system to be exceptionally well.

Thanking God for Ava being home and a year and praying for many years of joy with Ava...