Today we got approval for Ava to go off the vent during nap time. The doctor did tell the respiratory therapist that before we go off at night, that we would need to come into the hospital to watch her sleep without a vent. I'm hoping we can do that early May before we go see ENT on May 17. We are hoping that once we are off at night completely, the ENT will reduce the size of her trach on May 17. Please pray that this could happen. We are going so often without nursing and with Ava doing so great, it would be incredible for her to sleep without a trach and for us to take her in the car without an extra person.
Ava has been pretty stable lately with the three feeds at night. Not gaining any weight but eating pretty good orally during the day.
Thanking God for Ava's lung growth and praying for help...
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