Ava had another great day. We are so blessed to have her. She smiles at everyone and loves to touch people and play with them. She grabs at people's fingers to hold them and when they pass by her, she smiles at them. They changed her GJ feeding tube today and she has less secretions from her tube (only 10 ml) from the past which was 100 ml. This could have been the problem of why she may not have been absorbing all her food completely. They don't want to give her solids yet due to the reflux, but I am hoping that we can maybe start having her taste foods. Her nurse said there is such a thing as a "tasting bag" that we can put foods into and she can suck on. Neurology came in today and reviewed her because of her past possible seizures. They think they were seizures and they are keeping her on her seizure medication just in case. If she did have a seizure, they don't think it seemed to affect her. Praise God for protecting Ava! The neurologist spoke softly under her breath that "Ava might not be too bad off neurologically." Praise God for all he has done for Ava and our family! Tomorrow they will get her gas again and check her immune system with blood tests and get her weight.
This photo is Ava's new funny face she makes.
Thanking God for Ava's progress and praying for continued protection...
Each day she is getting closer and closer to coming home with you...so happy,..continuing in prayer...
ReplyDeletelove, meagan