Ava got her mickey this morning and it went well. They also got a blood gas which was 40 and got labs for her immunoglobins. She got weighed and she actually weighed less - 6.5 kg, she lost .04 kg because her food was getting backed up into her stomach and then being drained out of her stomach. No wonders why she was trying to nurse the other day - she was hungry! The lung center is still going to try and see if Ava can use a larger uncuffed trach because if she went home on a cuffed trach it could cause scar tissue and we don't want to cause any more damage because the only reason she has a trach is for her lungs. Also because Ava would have to come in and get changed to an uncuffed trach and probably spend the night and this would be after she was already home for a while. I'm not too fond of that idea because at that point she would be used to being home with her family. I also found out that all the home vents are on back order from two weeks ago, and they are looking to get one in for Ava. There are also some other children in need of vents too. Hopefully we can get one next week, and they are hoping to put her on one then after the lung center talks to ENT.
Thanking God that we are finally talking about Ava coming home and praying that we no longer need a trach...
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