Today we went to ENT (ear, nose and throat) specialist. This doc is really good and fast. He told us that if Lung Center goes down on her peep and she doesn't need the vent, we will go down in her trach size and she will breathe around it. She will naturally start to breathe out her nose because you can hear her breathe through her trach. He took the vent off and even put his finger over her trach and he said he would have never done that in the hospital. He was very happy with her results. She was acting a bit agitated but I don't think it was the vent being off but being in the stroller and wanting out. Even with the vent back on she still seemed agitated. We will be back in 3 months or sooner if the vent settings go down fast. I have no idea what Lung Center will do.
On her therapy side, she is really trying to stand now. We still have to hold her but she is planting her feet on the ground. So awesome!
Thanking God for this excitement and praying for her lungs to no longer need a vent...
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