Day 604

Ava is doing great. She came off O2 Friday morning and has been off since then. She is so happy and pulling her vent off as usual. We are supposedly getting a new nurse coming next week to work our weekend days. We are back to not having a nurse for Friday and Saturday next weekend. But if this nurse works out, we will have her on days so we can hopefully get some stuff done. Ava is on prednisolone for 5 days once a day for her cold.

Ava lost a bit of weight - she weighs 11.7 kg = 25.79 pounds. They said they want that to happen. But we don't want her to continue to lose too much.

Thanking God for Ava's progress and being able to handle a cold and praying to go down in vent settings next week...