Day 606

We went to get a blood draw today to see how her immune levels are to possible get the rest of her live vaccine shots. Then we had Cardiology and her doctor was extremely excited to see her. She had an EKG done on her heart and everything was great. The hole that is in the center of her heart is smaller so it's closing up. Until it's closed, it just means she can't go deep sea diving or flyer a fighter jet. I asked him if she wanted to, what happens? And he told me that he would go in and close it. ;) Hopefully it will close but he is very excited and doesn't expect to be seeing her after she is off the vent and will stop between the ages of 3-5! No long term treatment will be required. Praise God! We were so excited and very high on Ava again. Until...

We went to Developmental. We thought this was going to be a great visit because she was doing so much, including sitting up and signing and communicating. Well because she is either 16 months or 20 months, she is supposed to do so much more and she is (of course) not doing what an 18 month should. They only found her cognitive to be 13.5 months, but she does follow direction without any hand signals or motions. They don't even really grade her for using sign language. They also told me that she had brain bleeds and that she was crabby and didn't want to be touched while being in the hospital. What?! Did they have the right baby? All Ava ever wanted to do was play with somebody. Since when did she have a brain bleed? They said her upper trunk strength was poor but she is getting stronger and that they don't know if she ever will walk. That could be because of her brain. Kind of depressing but we know that our God does the impossible, right? Just look at Ava. They said they have seen worse brain scans, and the kids are doing fine.

In other news, Ava was watching me eat today and so I gave her a crouton to play with since she never really puts food in her mouth. And guess what happened? She put it to her mouth and tasted it! She didn't like it, but she knew where to put it!

Thanking God for his blessings and praying for Ava to walk, eat and be vent free...