Ava got her IVIG today for hopefully the last time. She got her blood taken today and when she saw the nurse walk in, she remembered her. Ava put her head on my chest and looked away from her. It's so amazing to finally have that connection with her; that she knows mama will make it better. We have an Immunology appointment in December and with the blood that the nurse took today, we will be able to see if she needs any more additional immunoglobins.
We got Ava up to her full 125 ml feeds and she has had no problems. Once in a while some gagging but it seems to have decreased. We have the Farrell bag off more often and she doesn't seem to be spitting up more gastric juices. Monday we will be getting a new "G" put into her stomach.
The girls and Ava are having so much fun with each other. She is scooting around and the girls scream with excitement which makes Ava go faster. She gets caught up in all her vent tubing and we have to untwist her.
Thanking God for all the fun and praying for years and years of more...
Thanking God
No comments:
Post a Comment