Ava has been doing great with her vent settings being lowered to a pressure support of 21. She still has some spit ups once in a while. Today was only once (tonight). She actually ate (orally) pretty well too - moving the food around her mouth. She took a really long nap this afternoon and she is really partying it up and talking tonight. She is really doing amazing things; moving around and signing for us that she wants to stand. And for those of you who know Ava well, she used to pick her legs straight out when you would lift her. Now she actually plants her feet and is trying to pull herself up. She is still weak from being in the hospital so long, but she can completely get herself to a sitting position and push herself around.
We have been sick lately; with exactly what I don't know. The girls and I have had coughs but thankfully Ava has been free of any illness. I have been wearing a mask any time I am near her.
Ava is up to 165 ml of food four times a day and her weight has seemed to have stabilized. She weighs 11.85 kg = 26.12 pounds.
Thanking God for his love that has been bestowed upon us and praying for strength, energy and Ava to be vent free...
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