Today was a great day with Ava. She is standing on her own in the crib, not completely able to pull herself but she is working on it. She is doing pretty good eating a few spoonfuls of food when we are eating together as a family. She chews it, but I'm not sure if it gets down her throat. If it did, we would take her to get a swallow study.
Tomorrow we have the therapies come for a 6 month review. We are hoping they don't go down in services because Ava still has many needs. On the 13th, we go to Lung Center so please pray that she stays healthy and we go down in vent settings. Can you imagine if they say after we go down that we can try "sprinting" her? That means you take her off the vent for a certain amount of minutes. Amazing thought!
Ava did lose a little bit of weight. She is down to 11.70 kg from 11.85 kg. 11.70 = 25.79 pounds. I will call tomorrow to see if GI wants to go up in food volume.
Thanking God for Ava's will to stand and praying that she will walk and enjoy eating...
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