Thursday, July 29, 2010

Day 186 - Trying to feed Ava...

Ava's gas was 84 this morning. She is on a peep of 8 and still 38 bpm and 40% O2. I was able to bottle her for a bit today and she did ok. She seemed to really want to do it. Just before we were going to try and see if she would breastfeed, when they put her in my arms, after untangling her from all her wires, she was really upset. They had to "bag" her (blow O2 into her lungs with the manual bag), and then her PIC line came apart, so back she went into the bed. So close, yet so far. Tomorrow they are going to do the swallow study and see if she aspirates.

Ava is really fussy. I pray for peace with her. She is such a fighter. Even the doctor that was on this week said so. She actually said that she isn't worried about Ava since she is such a fighter. But I really just wish my baby, who is so precious didn't have to go through all of this. I am just hoping for a better future for her, which is completely possible, where she doesn't have a lot of worries and will be off the trach.

Praying for Ava to breast feed tomorrow... Oh what a day would that be ;) (that and the day the trach comes off, oh and the day she comes home...and the day she doesn't need the g-tube...)

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