Ava had a good night and didn't need any extra puffers for her lungs. She had three therapies come in today so she was quite exhausted by the third one. And the third one was meeting her for the first time and she was gagging like crazy and lethargic. Of course after they left she was so excitable the rest of the day. Physical therapy is concerned about her leg muscles and that she is turning her feet in a little bit when she stands. As well as she lifts her legs up. She went and bought Ava some high-top sneakers and hopefully that will work before we need to get orthotics. Please pray that Ava can strengthen her legs and learn to want to stand and can easily stand. The physical therapist is also going to find us a bouncer or a walker for her to stand in because her exersaucer is a little tall for her short little legs.
The lack of steroids seems to be going well but she did need another puff of her albuterol inhaler this afternoon. Hopefully it was only because she was gagging so much and she had more secretions because she went outside on the porch. Speaking of which, she sat under an umbrella outside for at least an hour and a half just playing and happy as can be watching her sisters. She didn't mind the wind at all and would smile at her sisters while she watched them run.
Thanking God for progress and praying that Ava can outgrow her gagging, can stand and no longer need a vent...
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