Day 532

Ava has been having a great time. So happy and playful. She has now been off the steroids a full week. She only need her albuterol puffers for about 3 days one additional time in the afternoon. Lung Center said we could stop the Atrovent puffer today! Yeah - another med gone!

We got a Jumperoo from physical therapy on Friday, and we have been working with her in that. She did really great today. When PT came by today, Ava sat in it and we helped her bounce for about a half an hour.

We weighed Ava tonight and it said 10.2 kg. That would mean she went down from the 10.8 two weeks ago. She may need more food... This week Thursday we go for her "Gastric emptying scan". Hopefully that will help us to see if she aspirates as well as refluxes. We are still having trouble getting her to eat easily without gagging. Please pray that Ava can eat.

And Ava is still breathing room air - it's been over 2 weeks now! Praise the Lord! So thankful every day for the gift of Ava (as well as my hubby, Alexandra and Ariana). What gifts they ALL are!

Thanking God for Ava's successes and praying this scan can help us figure out her tummy situation...