Today we had Neurology at Children's Hospital. The doctor was amazed by her and called Ava a "wonder baby" and we are "wonder parents". He said that when you do have a lack of O2, you can see seizure activity but since we haven't seen it, it most likely won't happen. Ava isn't on any on seizure medication and has been off of that for 6 months. Please keep her in your prayers for this. We all know that she is only a "wonder baby" because of your prayers and God's plans. We don't have to go back for a year! Yeah!
In other news, our only night nurse called in on Sunday, citing illness, but she called yesterday that she is scared of the vent and Ava. She gets a lot of low minute alarms. This doesn't indicate a problem but that there is air coming out of her mouth or from around her trach. Ava doesn't drop her O2 saturations or heart rate so there isn't a problem but to position the tubing and stop the alarm. The agency feels that she doesn't want our "case" because she wants something easier like a g-tube case. She came to train at 1am this morning with another nurse that we had just that night and she said she still is afraid. So we are back to not having a permanent night nurse. The agency did get a few nights and thankfully our day nurse is coming in after working a day shift to work the night shift. Thank you God for her!
Thanking God for Ava and praying for more dedicated nursing...
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