Ava didn't sleep much last night so she was very tired this morning. She was ok yesterday but very lethargic. We let her sleep downstairs for a morning nap and we discussed calling the doctor to put her on steroids. We decided to call Lung Center and they said to change her trach. We had an instance Monday night that she was turning blue and shaking. Her O2 sats were 100% and I turned her O2 up to 4 liters but she was still blue in her arms and feet. It was pretty scary but after I held her the color came back and she stopped shaking. Her heart rate was above 150 so we were able to give her an albuterol. We are giving her round the clock Tylenol & Ibuprofen. Not sure if we should have called 911, but they probably wouldn't have known what to do. We don't want to go to the hospital since we know it's filled with RSV patients.
Ava seemed to get better this afternoon so we decided to skip the steroids. If she gets worse tonight, I will give them to her. She is satting mid-90s when she is asleep and besides being tired she is pretty happy.
Thanking God for Ava feeling better and praying that she continues to get better and doesn't need steroids...
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