Day 740

Ava is now able to go off the vent for 2 hours twice a day now. Next week Thursday we should be going longer. She is doing so well. We really need her off the vent soon since we don't really have night nursing and Ava loves to scoot around the house.

She got her live vaccine shots today while her sisters were in the doctors as well. Ariana got a bit of a cold and has asthma problems. I don't think I have ever taken three kids in to the doctors at one time. So grateful I had our nurse since Anthony is away. But once Ava is off the vent and the feeding tube, my life should be a breeze with three right?! I am having a lot of fun teaching the girls and they are amazing me with how much they information they retain. Ava even is communicating beyond what I can imagine. She is really enjoying eating ice cream and whip cream and is feeding herself.

We found out that our Friday, Saturday and Sunday nurse is going to take Sundays off now. She knows how much we need nursing, but she still decides to take them off after being on our case for at least 5 months. That will be a lot of fun if we don't get a Saturday night nurse. We have a new night nurse starting Tuesday night and hopefully she will enjoy our case and take us on 5 nights a week.

Thanking God for Ava's lung growth and praying for her to eat and breathe on her own...