Ava's gas was 72 this morning. We met with the doctors this afternoon. They told us to expect to have Ava in the hospital for months before we can expect her to even get to a home vent. They said she needs to be stable on the same settings and to help her grow. They also said good nutrition is what got her this far. I asked to possibly be able to breast feed. They have never done it before, but they typically don't have moms that pump this long either. They are willing to give it a go, if they think she won't aspirate.
Hearing that Ava might not come home for months breaks my heart into a million pieces. They have seen other babies like her (one about every 4 months) and she can probably grow out of it as long as she doesn't get sick. I just keep hoping they will be wrong about Ava, but at least Ava is still here.
Praying for more miracles...
we are praying ann. know that they have been wrong before and ava has survived against so many odds. god has a plan. lynne
ReplyDeleteAnn, we are praying as well. I am happy to hear about the nursing I know it is so important for you. What difficult news today. We love you, Maureen
ReplyDeletemore prayers for you and your family!~Amy
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