Ava had the best night she has had so far home. She barely alarmed and we slept wonderfully. We had an early Neurology appointment this morning, but it went really well. The doctor decided to go down on her med for seizures since we don''t see any seizure activity. He had us get an EKG done which was not fun for Ava since he scrubs off the top layer of her head and attaches the probs. It went really great afterwards because she slept but he also got all the activity he needed. If it looks good, the doctor will get rid of this medication probably at the next doctor visit! Praise the Lord! He told me that overall things looked good. We have a lot of work to get her developmentally appropriate but we already knew that. He said the outlook looks good though and I was very happy. ;)
She had no pains today which is great as well and she is going to sleep wonderfully right now after partying for about an hour. We are now giving her back her G juices every other time, and dumping them the other times. Her pediatrician spoke to the Lung Center doctor and she tried to talk him into dumping them completely despite that the GI doctor said it wasn't a good thing to do.
Her afternoon nurse today told me that she could see some good changes with Ava, especially that her head is getting rounder. Awesome to hear!
Thanking God for Ava being home and praying that we have continued and incredible success...
Great news Ann! Praying Ava continues to thrive at home. You are doing such a good job! Love, Jackey
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