Wednesday, May 18, 2011

Day 478

Ava had a wonderful night last night and she had a good day until later tonight. We worked on a lot of things with her today. She was in her exersaucer for at least an half an hour and she did take a half an hour nap. She also took at least an hour nap this afternoon. She was still a little wheezy but nothing like the past couple of days.

I did find out that her EEG was normal. Praise the Lord! We also are only going to get her blood draws every two weeks. That's great because every week is such a pain for Ava and to drag her in and out of the house. We don't even have to get her out of the house at all this week.

Ava ate some yogurt tonight and she knew to put the spoon in her mouth. She put it far in herself and didn't even gag. She ate just a bit, but she did it for probably about 15 minutes before she eventually started gagging. Overall it was a great experience and she touched the food and got it all over her face and tasted it and the spoon. I am very excited about the future for Ava. She certainly has a story to tell after she comes out of this. I really hope she can help all the other preemies and people think about not giving up. That even when things are hard, you can make it through. And that it's easier to not complain and be sad about what you're going through but have a big toothy smile and move on to the next challenge.

Tonight though after Ariana and I left to go to Kohl's for a little bit, Ava started spitting up and crying. She had a lot of gas in her Farrell/Hackett bag and about 50 ml of gastric secretions. That is a lot for her. Not sure if maybe it was the food, but she had eaten that a couple of hours before and it really wasn't a lot.

Thanking God for Ava's progress in feeding and praying that we can get her feeding like a normal child soon and stop gagging...

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