Ava had a good night and was in .5 liter of O2 for a while but then she was satting only low 90s and the nurse bumped her up to 1 liter again. She had a great day and did spit up a couple of times and of course gag. We went to her pediatrician and he was very impressed with her. Ava was trying to sit up from a laying back position in her car seat and was pretty stable sitting upright. He said he thinks she is 7-9 months developmentally. We really think she will make great strides the next month and more. He is happy that she hasn't stalled on her development so he sees a lot of hope in the future and he can't believe how great she is doing. What a miracle Ava is! It is SO exciting to see how God has answered our prayers. I have seen her expiratory volumes go up into the 100s range instead of the 60s-90s which means she is able to breathe higher volumes. This hopefully means her lungs will be stable enough to breathe on their own and take on large volumes of air.
We are going to be seeing a GI doctor in Syracuse in June. Hopefully we can get everything figured out and not have to go back again. We have a lot of doctors appointments the next few weeks. What a busy summer we will have, but it is so exciting having our family together.
We weighed Ava and she weighed less but it was on our scale with a diaper on and her vent. 9.13 kg = 20.12 pounds.
Thanking God for my beautiful family and praying that we are protected from illness...
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