Day 282

Ava's gasses were 56, 61, and 59. She is still not off the paralytic and she had her CAT scan today. They found that her right lung has still taken over for the left lung but that they right lung looks really good. They said the left lung looks a bit more open but it still is collapsed and the left lung stem looks much smaller than the right. They don't know if she will outgrow this and get better. They think maybe it would help if her left side was facing up and allowing the left lung to spread. I spoke with a lung center doctor that I haven't talked with before and we were going over her CAT scan. We looked back and noticed in May that she had another CAT scan and WOW - what a difference it is. It looks moth eaten and white and grainy while this October and even the August one looks quite clear on the right side. He said it gave him hope. There is a surgery that can be down to take out that bad part of her left lung, but it is very risky and with seeing that scan, he feels better about her lungs growing. They don't understand why the right lung can't compensate and cause the CO2 gasses to be lower. He even said that going 6 weeks without fluid should cause BOTH lungs to be terrible, not one, so he has no idea if that was even the cause of her illness.

I found something on the internet about Johns Hopkins. Does anyone know anything about them? Should we get help from somewhere else? The lung center doctor did mention speaking to other docs across the country. Maybe I can mention Johns to him.

Praying for the doctors and nurses to gain wisdom and knowledge to heal Ava's lungs... Please God...