Day 290 - 75 Days until Ava is a Year Old!

Ava's gasses were 55 and 65. She went down on her Fentynal to 3 and hopefully they will go down tomorrow. She didn't sleep to much last night again. She's been up partying with her nurse. This photo is with another one of Ava's favorite nurses. I came in tonight and rocked her to sleep a bit again. But then she woke up and we played for a little while and she was in her red seat that helps her sit up. She LOVES that seat.

They re-weighed her today and she still is 61 cm and her weight went down to 6.19 kg.

Thanking God for Ava's head and back strength and praying for the meeting on Friday with the docs to go well...