Day 293

Ava's gas was 47 today. She is off of her Fentaynl sedation - Yeah! She is doing so good. Praise God. So we need 3 more weeks of her doing good and not sick and then they will try the home vent and then we need four weeks on the home vent. She is so happy and smiles pretty much all day. The only time she gets upset is when she needs to be suctioned or she is tired.

Thanking God for these days when all she does is smile and stick out her tongue and praying that these days last forever...