Day 292

Ava's gasses were 48 and 49 today. REALLY good. She was very happy today, and I got a great video of her smiling and sticking out her tongue. She did good with her physical therapy and held her head very well.

The meeting went well today. Three of Ava's primary nurses came in today for her meeting. Two of them even came in on their day off. We are so blessed to have them and I hope God blesses them. We discussed Ava getting sick and how to react to it as well as getting more physical and occupational therapy. They decided to get rehab involved and they can start a plan. We also are going to have a "clinic" day so that all the docs can see Ava that need to. Believe it or not, it has almost been 6 months since they have checked her eyes. We had hoped she would be home by then. It was discussed that we are going to get her off the sedation and lower her steroid dose. We will keep her vent settings stable so she can grow and then try her on the home vent after those settings have been stable for a month. Then they would want her stable on the home vent. In the meantime, she needs to fight off any illness.

I love what our friend wrote yesterday that she was an addicted to Ava. I think I will call all of us who are addicted to Ava as "Ava Addicts" and we will all have to have "AA" meetings. I can't wait to the day we will celebrate Ava's victory over prematurity.

Thanking God for our beautiful daughter, and praying that her immune system can learn to fight off any illness...