Day 294 - 42 Weeks Old!

Ava's gas was 44 today! She is completely off sedation and very happy. We don't get much mucous from suctioning and she is still sleeping really well. She slept from 9pm - 5am and only woke up for a half an hour twice.

Alexandra came in today and she played with Ava a bit. Ariana is home a bit sick and daddy's asthma is acting up. Alexandra had such a wonderful day with a sister. A day Alexandra and Ava have never had with each other. They played with each other, smiled and at one point Alexandra was holding Ava's hand, pulled it away to give Ava her dolly and Ava held her hand out for Alexandra to grab again. She didn't want her dolly but to hold her sister's hand. Ava has only seen Alexandra probably around a dozen times, but they are still bonded to each other. Thinking of it makes me tear up and I love that even despite all that all of us have been through - without each other - we still are really all together as a family and nothing can change that.

I finally got to take photos of Ava in her second Halloween outfit - a flower - today. She was sick on the day of Halloween that we were going to put her in this outfit. Enjoy!

I heard that we are moving tomorrow to the other side of the PICU because RSV and flu season is coming and it's safer on the other side for Ava. Oh boy, another place to move to and after we just decorated Ava's room for Thanksgiving. ;)

Thanking God for lots of smiles today, seeing pure joy in Ava's eyes with her big sister Ali, and praying for more days but with us at home...