Ava slept really well last night and had a great morning. She was happy and smiling. They decided to change her trach back to a cuffed trach because she has so much air leaking around her trach when she sleeps. We will put water in the cuffed trach when she sleeps and take it out when she is awake (in case she pulls the trach out). Occupational therapy was able to come by and work with her today. Ava got stuck 5 times tonight to try and get her an IV. She loves to wave her arms and legs around so much that it knocks the IV out. She needs the IV right now because she gets her antibiotics through the IV.
The tentative plan from what I heard is to put her back on the home vent Monday and make sure this new trach works all next week and then two weeks from next Monday (not this Monday) Ava can go home. I'd rather not wait another week because we might lose the nursing. But either way, it puts us back 2 weeks.
Ava weighs 8 kg = 17.64 pounds.
Thanking God for Ava's growth and praying for those lungs to grow even more...
No comments:
Post a Comment