Day 395

Ava had another great day. I hope it's not just because she is being sedated. Her blood gasses were 71 and 67. She was on 40% O2 all day, and then we went down to 35% tonight and is still doing well. They will probably go down to 30% during the night and hopefully put her pressure down to 17 (from 24) either tonight or tomorrow morning. Her fentanyl (sedation) is on 4.

My mom and friend Becky came and changed Ava's trach for their training. They did great and will have to do it a couple more times. Her trach area was extremely stinky, so I washed her up good. Ava was so happy to see everyone. She smiled and gave everyone the "O" face. I dressed her up in her Valentine's outfit and sneakers.

Thanking God for Ava's progress and smiles and praying that the lungs grow right out of the need for a vent...