Day 393 - The Day Ava was supposed to come home...

Ava's back and SMARTER! Her blood gas was 68 all three times today. They went down on her breath rate to 10 and down on her sedation of Fentanyl to 6. We should be off the sedation by Friday and back down to her normal pressure support by then as well. She is on 26 PC above Peep and needs to get down to 17, but only 10 of those breaths are the 26 so she should definitely be able to handle it. She is on 40% O2. For being on sedation, she is so unbelievable. She did take two naps but she was rocking and rolling the rest of the time.

She was such a ham today. Making faces, noises, playing with toys. I didn't see her mad at all. I finally got to hold her since it's been over a week. It was wonderful. My arms were yearning for her and she fell asleep against me. She kept looking above her crib and to the right as if she was looking at something all day. I wonder if it's angels. I have never seen her looking like that before and there really wasn't anything to look at besides wires.

Praising God for all the work he has done on Ava and praying for Ava to come home and to show everyone the plans God has for her...